Thursday, 29 December 2011
Review of 2011 - Part Two
Review of 2011 - Part One
Faith and cultural perspectives on disability
Nobody can argue that a truly holistic assessment of a disabled child needs to take into account the family circumstances. But how well is the impact of faith and cultural background understood?
This article sets out some of the issues, and also responses available to health, social care and education professionals working with disabled children, young people and their families from different faiths and cultures. There is also a checklist to use in identifying gaps and developing local action plans.
A complex issue
The first thing to say is that this is a complex area. There are variations within faiths, as well as between them – and it is simplistic to speak in terms of eg the Muslim community or Christian community. In addition to specific sub-groups or denominations, there will be degrees of adherence to the principles that define a set of beliefs. Within families there could well be generational variations – often with younger members of the family taking a more liberal or westernized stance.
Variations also arise in times of crisis – such as the diagnosis of a child’s disability. Parents may tend to the extremes of their beliefs – from rejection of the faith to fervently embracing it. There can be a reversion to the core culture, so that practices perceived as tried and tested, or handed down through the generations, are given greater credence – particularly where the disability causes the parent to question their own skills. Clashes between cultural norms and UK norms (enshrined in legislation) may arise. This may be evident in areas such as physical chastisement and forced feeding, for example, putting the child at risk of harm.
At the root is a simple concept – that beliefs drive behavior. To understand why a person behaves as they do, is to understand the complexity of their belief structure. As professionals, we need to take the time to explore this area with families and to understand the influence of faith leaders and the community as a whole.
Cultural competence
Why do we shy away from these conversations? Fear of offending or stereotyping families, of being branded as racist or insensitive? A feeling that we should know more than we really do?
As part of this quest for understanding, professionals are advised to explore their own cultural competence – to identify experiences that have shaped their personal knowledge and understanding of different faiths and cultures. Your cultural competence is the lens through which you look at the world, and interpret information in front of you. A greater awareness of your own influences will enable you to work more objectively with those who have a different background to your own. Cultural competence increasingly features in the training of front-line health and social care professionals, and is a good INSET topic to explore.
Perceptions of disability
Compassion, love and support for the vulnerable are common themes across all faiths. Having a faith, and belonging to a community, can provide social capital for a disabled person. Professionals working with local community groups have the opportunity to contribute to the building of a strong and enduring support framework for the family.
However, religions offer differing, and sometimes confusing, views of disability; for example, a manifestation of “the sins of the Father”, and a form or punishment – or each person is created equal, and in God’s image.
Families may believe that the disabled child is a special gift that they have been entrusted to care for, that there is an innocence about the child that gives them a more direct relationship with God, or that the parent’s faith is being tested. Both of these stances can pose a risk to the child, if taken to extremes.
The family of a disabled child in a church with a strong belief in the healing power of prayer, could feel isolated and embarrassed when they are not “cured”, potentially leading to a risk of physical or emotional abuse as the child’s differentness separates them from the community.
Where there is a belief in malign influences, actions may be taken to expel spirits possessing the child, and believed to cause the disability. These can become physical and extreme – as seen in recent high profile cases. The emotional and psychological consequences of being labelled in this way compound the family’s difficulties within the community.
Cultural stigmas may result in denial or concealment of the child’s condition and so limit access to services, treatment, therapies and medication. Where provision is limited then professionals might well inadvertently collude with families who express a wish to keep their child away from public services. The challenge for professionals is to work with the family to overcome and change the views of the wider community.
Responses
Some very practical issues may sit alongside a belief system. For example medication containing preservatives based on porcine, bovine or opioid products will not be acceptable in some faiths. Similarly blood products and transplants may not be accepted. Suffering may be seen as part of life’s process, with a resultant view on the use of pain relief. Creativity on the part of health professionals is needed to find alternative responses and in some instances the medical view may prevail.
Where English is not the first language then the issues may be less around beliefs and more about support to describe the child’s needs, to interpret information provided and perhaps to implement complex instructions or therapies. This is another area where working with community groups, through interpreters and building up the skills of advocates, can be beneficial.
I’ve worked with one London borough which has invested in disability awareness training for supplementary schools, with the twin aims of enabling the schools to include disabled children effectively in their own group lessons, and to increase parental awareness and confidence in engaging with mainstream schools.
We secured lottery funding for a local group supporting BME families with disabled children to set up school based parent support groups, facilitated by trained volunteers from the BME community. The outcomes include an increase in the uptake of local services by BME families, who can find navigating their way through the various forms and processes intimidating. Increased confidence on the part of parents will result in better advocacy for their disabled children.
Creative local commissioning can provide culturally appropriate and cost effective disability services. A good example is Ronak, an Asian project run by Barnet Mencap, and Salaam, an inclusive scout group providing Islamically sensitive short breaks for Muslim families.
Culturally specific provision is one way to go – but the other is to ensure that services are sensitive and accessible across a range of belief systems. This requires some knowledge of the barriers that could exist. One real example is the reluctance of a Hindu father to allow his daughter to attend a siblings group set up to provide a break for brothers and sisters of disabled children. The concern he had was around the presence of boys, and group leaders of different faiths.
Checklist
The following questions will help you to evaluate the extent to which you are responding to the needs of families whose faith and culture differ from the host nation.
- Do you gather information on the faith and culture of the disabled children and young people you work with?
- Does the faith and cultural profile of the families you work with reflect that of the local area?
- Would you expect particular faiths and cultures to be better represented in your figures?
- How do you engage and work with the voluntary and community groups that support families of different faiths and cultures in your area?
- Is there scope for co-production of services – through partnership arrangements between faith groups and the public sector?
- Aiming High for Disabled Children has provided funding to establish forums for parents of disabled children – how are these groups reaching and representing families from different communities?
- Do you undertake equality impact assessments in the development of new services or the decommissioning of existing services?
- How accessible are your services to people from different backgrounds?
- Is there a need for more inclusive services – and some culturally specific provision as well?
- Have you examined your own cultural competence – and that of your team
Karen Walkden is a chartered psychologist, working part-time as Business Manager for ASEND – providers of SEND advice, assessment and support services to schools.
If you have any comments on the ideas expressed in this article - or have an interest in engaging faith and cultural groups in your services then please contact karen@flourishing.me.uk to explore this.
Testimonial - IT Healthcheck
Ruth Mulandi,
CEO CommUNITY Barnet
If you are interested in an IT Healthcheck for your organisation - then please contact us at simon@flourishing.me.uk for details.
Tuesday, 20 December 2011
Testimonial - Small Business Support - ASEND
"As we come to the end of 2011 and the first 6 months of ASEND, I'd just like to thank you again for your huge contribution to getting the company going and moving forward. 2012 should see some big changes as we develop and grow, but the seeds have most definitely been planted, nurtured with care by you."
Wednesday, 7 December 2011
Developing an Employee Promise
Supporting new business - ASEND
Report Back from FGM meeting in Barnet
26 Professionals across a range of disciplines came together in the London Borough of Barnet to find out more about Female Genital Mutilation, and the actions that can be taken to eradicate it.
Barnet Safeguarding Children Board has a Faith and Culture sub-group, who have been keen to address FGM issues in the borough. 28TooMany offered to run a workshop on Council premises, and this was facilitated by Flourishing Consulting Ltd.
Ann Marie Wilson from 28TooMany set out her aims – to bring together organisations working in the FGM area, and create some opportunities to join up information, support and programmes of action. The meeting started with an explanation of FGM – in its four forms – and the prevalence of FGM across different countries. 28TooMany gets its name from the number of African countries where FGM is common practice.
Illustrated by personal stories Ann Marie explained the cultural reasons why FGM is practiced and the stigma associated with non-compliance. She expanded on the global situation, UK legislation and emphasized that FGM is practiced in London Boroughs including Barnet. This was confirmed by health professionals in the group.
FGM has been illegal in the UK since 2003. However there have been no prosecutions, and it is very difficult to prevent. Anti-FGM guidelines are available on the Home Office website. Details of resources are provided in a separate document prepared for distribution to those attending the meeting – and the 20 or more people who expressed interest, but were unable to come along.
It is worth stressing that FGM is not supported by the scriptures or holy books of any faith.
In Barnet FGM has been found in girls and women presenting themselves for maternity services – and referrals are primarily from the health service, rather than through social care. FGM can be seasonal, with young girls travelling abroad at the beginning of the long summer school holidays – so that they are recovered in time to return to school. Cutting parties are evident in the UK.
Rita from Forward spoke of the support and actions underway in the UK. The organization works with communities to empower women to take control of the situation. An NHS funding project in Bristol has made significant progress. Forward services include clinics, counseling and leadership training skills so that groups of women are able to achieve change for their communities. Peer to peer support is crucial within communities – as is the training of young advisers to catch a generation.
Dorrett from Imkaan talked in detail about an integrated response across different agencies – highlighting best practice – and agreeing to adopt consistent standards.
The actions in Barnet include the following:
- Providing those attending the meeting with materials with which to brief their peers – including copies of the slides presented
- Including FGM in the Barnet violence against women strategy
- Sharing information about support available
- Developing a detailed plan through the Faith and Culture sub-group of the Safeguarding Board
- Reporting back progress during the 2012 Safeguarding Month.
Karen Walkden
Flourishing Consulting Ltd
Friday, 2 December 2011
IT Health Check
FGM meeting in Barnet - 11am 28.11.11
Great meeting on 28th November 2011.
Thursday, 17 November 2011
FGM meeting in Barnet - 11am 28.11.11
Social Action and Social Innovation Conference
On 14th and 15th November I attended a 2 day conference at Lambeth Palace - hosted by Faiths Forum for London.
Wednesday, 19 October 2011
Unshackling Good Neighbours
Monday, 10 October 2011
IT Health Check
Olympic Truce - an update
Olympic Truce
The Olympic truce was a time when conflicts would cease so that athletes could travel safely to compete in the Olympic games.
London Borough Faiths Network are suggesting that local boroughs could take the concept of the Olympic truce and use it as a banner for initiatives that bring faiths together, resolve conflicts and achieve peaceful outcomes. Rather in the manner of Inter-faith week - each borough would develop responses that work locally.
The Truce is something that LBFN members can relate to because it naturally brings religious groups and the public sector (community safety, police, youth services, domestic violence teams, schools, etc) together towards the same end.
Each nation hosting the Olympics declares the truce through its parliament. The truce is expected to run for 100 days starting on 9th June 2012.
Activities so far in Barnet
ü Participated in LBFN meetings on the subject – including one in September with Duncan Green.
ü Briefed the Barnet Multi-faith Forum, who are now considering their activity.
ü Briefed CYPNet.
ü Met with More than Gold Director – and identified local contact.
ü Briefed the Barnet SCB – Faith and Culture sub-group
ü Briefed Lucy Somali.
Resources
Duncan Green has said that there will be a Faith 2012 Inspire pin badge and logo available to tag faith activities inspired by the Olympics. The requirement is that they must be open to the community (of all and no faith) and not evangelical. There should be a clear benefit to the community. Applications close at the end of September.
Get Set is a programme of resources for schools to pick up the Olympic theme. There are activities for all ages from 3 to 19 years, as well as fact sheets and advice for educators.
More than Gold – mobilizing churches to offer hospitality, open events screening Olympic events, schools resources etc. The community festivals model is promoted with accompanying training to deliver these effectively. The local contact for Barnet is also part of the Copthall Stadium development team. To date one of Barnet’s towns is picking this up actively. (KW in contact, and attending a More than Gold event in Watford on 19th October 2011)
Visit Jewish London – website for visitors and athletes developed with the Jewish Volunteer Network.
Faiths Forum for London are getting involved. (KW linked to this)
Oasis Community Learning – developing a 100 days of peacemaking programme with a logo for branding local activities. Resources will be made available – and the challenge put out “what can you do?” This is part of their schools work around the Restoring Peace theme, and is endorsed by the UK government. (KW following up the link)
London Boroughs Faith Network are co-ordinating local grassroots faith responses, and disseminate information through their blog. A sub-group is due to meet with the Home Office to discuss the involvement of faith groups with Olympic activities (KW is a member of the LBFN, and part of the group to meet the Home Office)
Piece of Gold – private companies to sponsor Lego bricks to be loaded onto a trailer and taken to different locations for communities to construct
Local activities for Barnet?
Prior to the games:
- Hospitality and volunteer stewards from faith communities along torch route.
- Mill Hill School is the pretraining venue for archery and hockey.
- Barnet Multi-Faith Forum are planning an event to promote the truce concept (details to be agreed) (KW briefed them on the event and JG attended the LBFN)
During the games:
- Opening faith and community venues to show televised Olympic events
o Co-ordinate and publicise
o Existing venues with large screens and PA systems
- Schools project work, highlighting existing resources
- Commissioning summer 2012 youth activities through Futureversity, and sports activities for other age groups through the small grant and Milly Apthorp programmes
- Concerted efforts to tackle hate crime and promotion of third party reporting through faith communities
- Multi-faith prayer walks around crime hotspots in the borough
- New community safety initiatives
- Gun and knife amnesties
- Peace festivals – or theming the local community festivals around peace, using Boris’ bunting
- Support for Street Pastors work in areas of conflict
- Taster events to provide residents with the opportunity to try Olympic sports.
After the games:
Dates for regional activities open to the public
21st September 2011 – Peace One Day – celebration at the O2 arena, London – a 365 day countdown
21st December 2011 – POD concert in Istanbul – 9 month countdown
21st March 2012 – POD concert in the US – 6 month countdown
2nd – 5th June 2012 – Queen’s Diamond Jubilee
9th June 2012 – multi-faith celebration in Trafalgar Square, to launch 100 days of peace. Showcasing activities where GB is active, but there is more to do. The aim is to mark the beginning of the truce as part of the Olympic event. Could include:
A gun and knife amnesty
Interfaith relationships
International development
The Northern Ireland experience
21st June 2012 – Opening of the London 2012, POD festival and Derry/Londonderry 3 month countdown
14th - 15th July – Interfaith walks across London supported by the The South London Interfaith Group.
21st – 26th July – Torch is overnight in Walthamstow, Bexley, Wandsworth, Ealing, Haringey and Westminster.
27th July – 12th August – Olympic Games
29th August – 9th September – Paralympic Games
21st September 2012 – Peace One Day concert in the Olympic stadium, headlined by Elton John
There will be a post games, multi-faith, celebration event as the truce is handed on to Brazil for 2016.
NB:
The 40th anniversary of the Munich 1972 tragedy will be marked during the games.
Ramadam falls from 21st July to 20th August 2012.
Other activities planned by London Boroughs
St Johns church in Waterloo is reflecting on aspects of war as the bicentenary of the battle of Waterloo is not far off. In 2012 the focus is on war and peace. From 13th to 17th July there will be a festival with a youth slant to it, including exhibitions, debates and a commissioned piece of music drawing on texts from different faiths on the subject of peace.
The East London Mosque is developing a programme to challenge Islamaphobia in sport, and also knife crime.
Restoredrelationships are a Christian organisation addressing domestic violence, and plan to raise the profile of this issue under the Olympic truce banner.
Sikhs in the City will have multi-faith teams running in relay across all boroughs in the first and second weeks of January 2012 – finishing in Stratford at the Olympic stadium. They are a worldwide group, organizing multi-faith relay races for men and women.
The Lambeth Mediation Service are deploying their Peace Ambassadors, recently involved in post riot facilitated dialogue.
Greenwich multi-faith forum and local involvement network (LINk) have merged in response to cuts in funding. So their focus is on health and wellbeing across the faiths, with a sports focus for 2012.
Nominated torchbearers
Approx 30 torchbearers crossing Barnet, perhaps 8 will be local residents
Mark Healey – Green Man Community Centre, East Finchley – also LGBT work
Sally Dryden – St Barnabas Church, Woodside Park – community work